Related Organizations

Dementia

Ageless Design - Ageless Design is a resource for caregivers and professionals dealing with Alzheimer’s disease and related dementias.

Alzheimer's Association - Dementia information and local support groups.

Alzheimer's Association CareFinder - The CareFinder site from the Alzheimer's Association is a great place to get information on planning ahead, care options, and coordinating care.

Alzheimer's Disease International - Alzheimer's chapters in many countries.

Alzheimer's Europe - A good overview of the different types of Dementia.

Alzheimer's Foundation of America - The organization focuses on Dementia care, and holds candle lighting and Dementia screening events in November.

AlzOnline.net Caregiver tips - Caregiver tips on a variety of subjects.

The Association for Frontotemporal Degeneration  - Resource for information and support on frontotemporal degeneration

Movement Disorders

Dystonia Medical Research Foundation - A medical research foundation.

Michael J. Fox Foundation - Dedicated to ensuring the development of a cure.

MSA Support Group  - Multiple Systems Atrophy: MSA / Shy-drager 

National Parkinson Foundation - Promotes research, outreach and education on Parkinson's disease

Parkinson Disease Foundation, Inc. - Promotes education, advocacy & research.

PSP Society  - Society for Progressive Supranuclear Palsy (PSP); local support groups

We Move - Promotes education and awareness of movement disorders. 

Other

Area Agencies on Aging - Local resource information & Ombudsmen.

Family Caregiver Alliance - Excellent site for information including availability of local resources (by state), caregiving tips, and end of life issues.

Long Distance Caregiving  - A new free booklet from the NIA (National Institute on Aging) addresses the concerns of long distance caregivers. Click on the link above to visit the NIA website to review, read, print or order.

Medline Plus  - Patient Issues - Resource Links

National Hospice and Palliative Care Organization (NHPCO)  - The largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States.

NORD - National Organization for Rare Diseases