LBDA

Caregiving Briefs

If you’re a new LBD caregiver, or need a refresher on a particular topic, then our new Caregiving Brief series is just for you. Developed with the new caregiver in mind, this series covers a variety of every day caregiving topics. 

Each Caregiving Brief includes: 

  • An overview of the topic
  • Some helpful suggestions
  • Links to additional resources

If there is a topic you’d like to see covered in this series, please let us know! Send your suggestion to lbda@lbda.org and put “Caregiving Brief request” in the subject line.

TOPICS:

Genetics – Learn how much genetics do or do not play a role in who gets LBD.

Community Resources – From home meal delivery to adult day programs, every community offers a variety of services that can help families facing LBD.

Behavioral Symptoms – Changes in behavior in LBD are a common challenge for families. Start here to learn the different factors that may influence behavior.

Medications – A comprehensive treatment plan in LBD can improve quality of life for both the person with LBD and the family caregiver. But not every symptom warrants treatment all the time.
 

Care Briefs on Behavioral Changes in LBD:

These Care Briefs were developed by Dr. Rosemary Dawson, a former care partner to her husband who died in 2014. Other LBDA volunteers, current and former care partners, LBDA staff, and members of the LBDA Scientific Advisory Committee provided input and reviewed the Care Briefs.

Care Brief #1 Behavioral Changes in LBD: Introduction and Overview – This Care Brief provides definitions, descriptions, and examples of common behavioral and mood changes (hallucinations, illusions, delusions, paranoia, misidentification, Capgras syndrome, reduplicative paramnesia, depression, apathy, anxiety, agitation, verbal and physical aggression, disinhibition, wandering, and catastrophic reactions).

Care Brief #2 Behavioral Changes in LBD: Causes of Behavioral Changes in LBD – This Care Brief summarizes possible causes or triggers for behavioral changes which may help LBD families understand, prevent or minimize the symptoms, develop strategies to cope with them, and support the person with LBD and their care partners. 

Care Brief #3 Behavioral Changes in LBD: Non-Drug Strategies that May Prevent Behavioral Changes – This Care Brief summarizes evidence-based, non-drug strategies that care partners can incorporate into daily life that may possibly prevent or curb behavioral changes.

Care Brief #4 Behavioral Changes in LBD: Non-Drug Strategies to Manage Behavioral Changes – This Care Brief summarizes strategies that care partners can use to manage, reduce, or perhaps even eliminate many behavioral changes.

Care Brief #5 Behavioral Changes in LBD: Alternative Non-Drug Therapies – This Care Brief addresses the non-drug therapies that can be used alone or in combination: physical, occupational, speech, art, music, aroma, reminiscence, touch, massage, pet, nutrition, light, validation, support group, individual, and family therapies. 

Care Brief #6 Behavioral Changes in LBD: Medications for Behavioral Changes in LBD – This Care Brief summarizes things to know about LBD treatments, in general; when to consider medication to treat behavioral and mood changes; medications that may reduce behavioral and mood changes; and medications that should be avoided or used with caution.

Care Brief #7 Behavioral Changes in LBD: Resources about Behavioral Changes in LBD – This Care Brief lists some online resources related to the topics of each of the six Care Briefs on behavioral changes in LBD.
 

Coming soon:

Advanced Care Planning - The ‘goals of care’ may be slightly different to each person with LBD. Learn what they are early in the disorder and consider how they may evolve as the illness progresses.

Anesthesia and Hospitalization – Hospitals bring new challenges for a person with LBD, from anesthesia to increased confusion. Being prepared is half the battle.

Driving and LBD – Safety in driving is a common challenge in LBD from early in the disorder. Learn what can impact driving safety and who most frequently makes the decision it’s time put the keys away. 

Falls/mobility issues – From muscle rigidity to dizziness, falls are very common in LBD. Explore the causes of falls and tips to minimize the risk.

Managing Incontinence – Compared to other forms of dementia, incontinence can occur rather early in LBD. Routines and schedules are important tools when managing incontinence.

Person-centered care - Incorporating knowledge about an individual’s personality, preferences and history into daily care can help maintain a person’s sense of dignity and self-worth, as well as minimize care resistance.